logo IDIBELL
Català  |   Castellano  |   English
Search
The InstituteResearchWhat's onPlatformsJoin usTools
 

News

boto imprimir
Date: 27/02/2017

Zumba fundraiser for Rett Syndrome


Move for research! With this motto, next Saturday March 11 at 12:30 pm, the BELLVITGE MUNICIPAL SPORTS CENTER "Sergio Manzano" hosted a MASTERCLASS of zumba to raise funds for research on Rett syndrome, a disease that affects 3,000 girls in all Spain, and which constitutes the first cause of mental retardation in women. The activity raised a total of one thousand euros in voluntary donations, and was attended by almost 200 people and the presence of Núria Marin, mayor of L'Hospitalet, and Christian Alcazar, deputy mayor of the city.

 

Coinciding with the week of commemoration of the International Women's Day, the Bellvitge Biomedical Research Institute (IDIBELL), ElRetto blog (Blog for information and support to research on Rett syndrome) and the Catalan Association of Rett Syndrome joined efforts to fight a disease that causes loss of hand use, loss of language and, very often, epilepsy in patients suffering from it. The initiative received the commitment and support of the Hospitalet de Llobregat City Council and the Bellsport Sports Association from the start.

 

Rett syndrome is a congenital disease linked to the X chromosome. It affects 1 in 10,000 women and causes  neurological affectation that usually manifests during the second year of life. Thereafter, those affected become dependent on others for the rest of their lives. Rett syndrome can be cured, but today, financial resources are needed to ensure that biomedical research projects which should lead to the identification of molecular targets for treatment can be carried out. In this sense, IDIBELL is a leading institute in the research of this rare disease thanks to the work of a team of scientists led by Dr. Manel Esteller, Dr. Sonia Guil and Dr. Raul Delgado.





foto Zumba fundraiser for Rett Syndrome
Zumba fundraiser for Rett Syndrome

foto Núria Marín with the volunteers
Núria Marín with the volunteers
foto Raúl Delagado, IDIBELL researcher, and Jordi Serra, president of the Catalan Association for Rett Syndrome
Raúl Delagado, IDIBELL researcher, and Jordi Serra, president of the Catalan Association for Rett Syndrome
Share/Bookmark
 
© 2017 Institut d'Investigació Biomèdica de Bellvitge



Results by pageInitial date
Select date
TitleFinal date
Select date
Search


Your password is about to expire. Please, write in a new password to continue

Remember this password allows you to access to all IDIBELL’s web applications

New password:
Confirm new password:

Accept



Your password is about to expire. Please, write in a new password to continue

Remember this password allows you to access to all IDIBELL’s web applications

New password:
Confirm new password:

Accept


Cancell

Passwords doesn’t match
The password must have at least 6 characters
The new password can not contain special characters
User register

Name
Surname
Second Surname
E-mail
User
Password
Language


Accept


Cancell




Encara no heu contestat l'enquesta de satisfacció sobre la píndola formativa sobre patents. No trigareu més de cinc minuts a fer-ho. La vostra opinió és molt important per millorar l’IDIBELL.

Voleu fer l’enquesta ara?

Yes

No




Further personal and contact information is needed to maintain IDIBELL databases.

Do you wish to fill the form now?

Yes

No





Please, remember to introduce your holiday’s planning in the application

Accept

Cancell